In what appears to be the first study to gauge college students’ willingness to donate to a genetic biobank, the researchers surveyed 250 male and female undergraduate and graduate students.
Among those surveyed, 64 percent said they were willing to donate to a biobank, said study author Olivia Adolphson, an undergraduate psychology researcher in SMU’s Dedman College of Humanities and Sciences. Students filled out a two-page survey with 18 questions designed to assess their willingness to participate in a biobank, an archive of blood and tissue samples donated by individuals for the purpose of genetic research.
“Overall I found that my sample was very willing to participate in a biobank,” said Adolphson. “The reasons cited were altruism — people want to help others — as well as to advance scientific research and to help find cures. The barriers were concerns about privacy, lack of time, lack of interest and lack of knowledge.”
Adolphson has been invited to present two posters on her study, “College Students’ Perceptions of Genetic Biobanking,” in April at the 33rd Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine in New Orleans.
“This appears to be the first study to gauge college students’ willingness to donate to a genetic biobank,” said the study’s principal investigator, Georita Frierson, assistant professor and health behaviors expert in the Department of Psychology.
Of the students surveyed, 73 percent self-identified as white, while 27 percent self-identified as an ethnic minority. Before being given a description of a genetic biobank, 36 percent said they’d heard of the term. After being informed, 64 percent said they were willing to participate.
“Overall I found that the students who were more educated, the seniors, were more familiar with the concept of a biobank, and they were also more comfortable with it,” Adolphson said. “So we think education plays a role in acceptance.”
The research indicates that the medical community should do more to inform people about biobanks, Adolphson said.
“The biobank community needs to educate people. And they need to use simple language that isn’t intimidating, because lack of knowledge is a big barrier,” she said. “From this research we saw that younger people are going to be willing to participate, because they are open-minded about the concept of research.”
Adolphson’s research followed a larger study by Frierson, which surveyed 135 adult Dallas-area residents who also attended one of Frierson’s 28 focus groups on the subject of biobanks. That study found that 81 percent of the participants had never heard of biobanking. Before the educational focus groups, 64 percent said they would participate in a biobank. After focus groups, that number jumped to 90 percent, Frierson said.
Written by Margaret Allen